Minutes of AGM of CLDI of 21st April 2012

1. Newsletter giving an update of ongoing issues was issued and discussed. See updates section

2. Discussion regarding the constitution was conducted.

3. Constitution was voted on and accepted unanimously.

4. Roles were discussed and the following roles were deemed to be required

5. Roles were voted on and the following appointments were made

Constitutional Roles

• Chairperson - Aoife O Gorman

• Treasurer - Greg McDowell

• Secretary – Sylvia Webb

Additional Roles

• Social and Publicity - Suzie Murphy

• Transport to the UK – Joe McGivern, Aoife O’Gorman, Sean Madigan, John Murphy

• Website – Sylvia Webb

• Organ Donor Awareness – Nikki Thompson and John Murphy

6.  A wide ranging discussion related to the many issues on Transport to and from the UK happened. We decided that a committee approach to this issue was appropriate. There are many issues and those on the committee will take responsibility for different issues with quarterly catch ups as a minimum. Below are some of the areas that we plan to address. There are many more.

• Have people employed to get ambulance service runing the emergency transport as recommended in the Hiqua report.

• Returning of families from London by air corps

• Discussions with airlines to facilitate easy commercial flights and travel

• Flight cost

• Get patient and parent to be seen as a unit so parent can’t be left behind-1 parent minimum

• Get agreement that 2 parents can go unless there is an unusual circumstance.

• Getting to Baldonnel safely in emergency cases

• Luggage

• Getting passport requirement waived

7. Revision of Emergency transport patient leaflet.

8.  The transition from Crumlin to Vincents was discussed. Further information is being sought for a section on the web site.

9. Joe will appear on the Wednesday Midweek Show.

10. Membership forms will appear on the web site.

11. Questions were raised about fundraising that people might like to do. In principle we are not a fundraising organization.  However occasions arise where we want to be able to support. We will discuss this issue with CMRF.

12. Travel Bursary to be finalized

13. Charity number will be applied for.

14. The new hospital was discussed. It was decided that when it is becoming a reality that we will again be involved in the meeting to ensure that our concerns are taken into account.

15. Prof Corbally is not available in Crumlin so surgery all has to happen in London. We will approach the hospital to ask what the future plan is.

16. Family fun day will be held in Baldonnel. Suzie has started planning it.

17. Discussions regarding Donor awareness occurred. We will take a more active role in the organ donor network. It was agreed that all individuals could do more to promote donor awareness. Suggestions will be put on the web site.